Islet Cell Transplant - Doc advice needed

[CowboyPhil]

Isn't there a transplant doc on here?

My wife is going for a consult on having this transplant done at Baylor. Would like any info possible.
Thanks

 

[ctrawick]

@Poketologist

 

[BigBobBarker]

I have helped poketogist with a couple of traditional pancreas transplants and would consider that option as well before the islet cell. It isn't a easy course either so it is certainly for someone whose diabetes is ruining their life and life expectancy. Be sure you know exactly what you are signing up for.

 

[CowboyPhil]

She has already had a whipple 3 years ago and still has a small neoplasm cyst in the tail of her partial pancreas. She'said experiencing frequent and painful pancreas it is attacks. Basically taking 20-30mg of oxycodone daily to deal with the pain. Not every day but probably 4 out of 7 days per week.

 

[CowboyPhil]

This has been going on since last Nov

 

[BigBobBarker]

I would probably go ahead and take the pancreas while the neoplasm is small and has not metastasized. I know that she does not want to take pain medication but the amount she is taking is quite small for someone with a problem like she has. Also, she could consider getting celiac plexus lysis for additional pain relief.

 

[CowboyPhil]

Update. She had an EUS and ERCP today to try to remove the Stent from the Whipple surgery. 2 mm Stent is embedded in the pancreas and duct is completely closed when injected with contrast. pancreas is atrophied measuring only 5-7 mm in diameter.

Transplant surgeon to see us in the morning.

 

[SamuraiFred]

Thoughts and prayers with your family